The Ninth Year with BMS

FB Mothers DayMother’s Day is a week away, and for me, that day of celebration is mixed with one more anniversary with Burning Mouth Syndrome (BMS). I have another blog at A Burning Journey that you are welcome to visit if you would like to learn more about this mysterious malady that affects many more people than you would probably guess.

This is year nine and I find it hard to wrap my mind around the fact that I am entering the tenth year with BMS, but I know there are folks out there who have suffered from this for multiple decades, so I am not alone.

Each year, I pray that there will be a cure or even just a diagnostic test that will definitively identify BMS without the lengthy and uncomfortable process of ruling everything else out that we currently endure.

Many sufferers ask, “Why isn’t there a nonprofit that works on this, or a celebrity spokesperson who speaks out for us?”

I suspect it is because we haven’t reached a critical mass of suffering, my friends, and since BMS is not considered a terminal disease, it simply doesn’t have the urgency and resonance of other ailments that are.

If you have Burning Mouth Syndrome or love someone who does, please get information to help you, or to help you help them. The Burning Mouth Syndrome Support website is supported financially by an individual whose wife has suffered from BMS for years, and I have volunteered to maintain it so we can reach out to those who are new to BMS or are just interested in learning more about it. Check it out and contact us if you have questions. We may not know all the answers, but we are keeping up with the research and sharing it, so alert us if you have something we haven’t posted.

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4 thoughts on “The Ninth Year with BMS

  1. Thank you so much for your continued postings. I have had BMS for many years, so I appreciate your honesty and compassion. i am glad to have the info. for the support website. Thank you, Kali, you are terrific!
    Ellen

    Like

  2. Hi Kali and thank you. We’ve messaged once or twice in the past and I am on the research team with Dennis.

    Day by day and we never give up hope. I appreciate all you do.

    Happy Mother’s Day!

    Like

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