The Patient Maze


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NOTE: Although this post will remain on Kali’s Musings, it has been reproduced and future BMS posts will appear on A Burning Journey. Please check it out if you are interested in more about Burning Mouth Syndrome.

I have been reading about the Affordable Care Act snafus and victories with great interest. Here is a site that has very good coverage: Summary of the Affordable Care Act. I don’t begin to guess how this will all shake out, but from personal experience as a sufferer of Burning Mouth Syndrome, I can tell you that healthcare was a maze, to begin with, and an expensive maze at that!

I have been approached to do an interview about Burning Mouth Syndrome, and in preparation for it, I began combing through my three Pendaflex folders bulging with medical forms, blood tests and most of my records since the syndrome began for me again in 2008. (This is my second time around) I am a fairly organized person and had kept a decent record of procedures I had gone through and meds I had tried, but just to make this interview easier, I spent time putting that all into a spreadsheet.

It is 10 pages long…in double-sided printing.  I could use it as a brochure! Continue reading