BMS and Me


BMS CloudNOTE: Although this post will remain on Kali’s Musings, it has been reproduced and future BMS posts will appear on A Burning Journey. Please check it out if you are interested in more about Burning Mouth Syndrome.

Burning Mouth Syndrome (BMS): “Chronic burning pain in your mouth. The pain from burning mouth syndrome may affect your tongue, gums, lips, inside of your cheeks, roof of your mouth, or widespread areas of your whole mouth. The pain can be severe as if you scalded your mouth.”

ABC News covered it in a piece called “The Mysterious, Agonizing Pain of Burning Mouth Syndrome.”

There is no conclusively identifiable cause, no assured treatment and definitely no cure.  The few research studies that have been conducted note a correlation between depression and BMS, but neglect to ask,  “Which came first?”  In my case, the BMS definitely caused depression; not the other way around. Researchers suspect dental work, dense nerve tissue in “supertasters,” hormonal links, or neurological damage, but no one knows for sure.  If you are interested in more details, check out Defeating the Dragon.

I have been battling it since May 2008, and after a hectic flurry of exams, specialists, tests and possible diagnoses over the first year or two, we settled on this bizarre syndrome that affects less than 1% of the population.  Oh, how special!

November 2013 Update: Recent news coverage now indicates it is affecting “2-5% of the population,” but the majority are still women in the 50-70 age range. Why are there more sufferers?  I assume because our population is aging and so more are entering that age range.  It does not bode well for the future when more and more of us will be 50-70 years old.   Continue reading